ALS Association
www.alsa.org
Provides education, advocacy and information about amyotrophic lateral sclerosis (Lou Gehrig’s disease).
Alzheimer’s Association
www.alz.org
Provides resources for families and caregivers of those suffering from Alzheimer’ disease.
Autonomy Now
www.autonomynow.org
AUTONOMY represents persons with disabilities who expect choice in all aspects of their lives, including choice at the end of life.
Caring Connections
www.caringinfo.org/i4a/pages/index.cfm?pageid=1
Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation.
The Center for Family Caregivers
www.familycaregivers.org
Provides online support and educational materials to family caregivers.
Compassion & Choices
www.compassionandchoices.org/
Compassion & Choices is our parent organization. As a national organization with over 60 chapters and 30,000 members, our parent organization helps patients and their loved ones face the end of life with calm facts and choices of action during a difficult time. The national group also aggressively pursues legal reform to promote pain care, put teeth in advance directives and legalize physician aid in dying in other states.
Compassion and Support.org
www.compassionandsupport.org/
It is a website developed and coordinated by The Community-Wide End of Life/Palliative Care Initiative, an initiative of the Rochester Health Care Forum. The goal of this initiative is to ensure that care provided to a person who is approaching death, in pain, or both, meets the person's individual wishes and is of the highest quality, regardless of where this person lives or who is providing their care. The website has information about and sample Medical Orders for Life Sustaining Treatment (MOLST) forms.
Death with Dignity National Center
www.deathwithdignity.org/
Death with Dignity National Center is one of the leaders in the death with dignity movement, based on its development, implementation and defense of Oregon’s Death with Dignity Act.
Do Your Own Proxy
www.doyourproxy.org/
You can create your own advance directive forms online
Eldercare Locator
www.eldercare.gov
Provides information about local services
Family Caregiver Alliance
www.caregiver.org
Offers research, publications, fact sheets, public policy news and information on a variety of long term care concerns.
Friends and Relatives of Institutionalized Aged
www.fria.org
Provides information, support and advocacy for New York nursing home residents and their family caregivers
Hospice and Palliative Care Association of New York State
www.hpcanys.org/
This statewide organization is dediecated to ensuring the availability and accessibility of quality hospice and palliative care for all persons in New York State confronted with life-limiting illness.
National Alliance for Caregiving
www.caregiving.org
Provides caregiving tips and guides and an internet clearinghouse of 1,000 reviewed and rated resources for caregivers.
National Family Caregivers Association
www.nfcacares.org
Offers caregiving tips and on-line resources including a support network and resource guides.
National Hospice & Palliative Care Organization
www.nhpco.org/templates/1/homepage.cfm
National Hospice & Palliative Care Organization (NHPCO) cares for terminally ill persons and their families, and is dedicated to making hospice an integral part of the US health care system.
Oregon Department of Human Services
www.oregon.gov/DHS/ph/pas/about_us.shtml
The Oregon Department of Human Services' webpage has all of the forms and annual reports on Oregon 's aid-in-dying law.
Pain Management Resources
www.vachss.com/help_text/pain.html#org
Pain Management Resources provides a complete listing of groups from the American Alliance of Cancer Pain Initiatives to the Pain Research Institute.
Palliative Care Policy Center
www.medicaring.org/index.html
Palliative Care Policy Center (PCPC) offers expert support to hospitals, nursing homes, health systems, hospices, and other organizations that serve individuals nearing the end of life.
Westchester End-of-Life Coalition
www.westchesterendoflife.org/
The Westchester End-of-Life Coalition has a vision of a community where people at the end of life are comfortable, cared for and supported. The website has an excellent list of frequently asked questions and answers on hospice and palliative care, health care proxies and pain and symtom managment.
World Federation of Right to Die Societies
www.worldrtd.net/
World Federation provides an international link for organizations working to secure or protect the rights of individuals to self-determination at the end of their lives.
